Wednesday 15 June 2016


wow been a while... Hi to all, best wishes and hope the days have been good . Summer is it here? answers on a windy postcard....

the nice stuff first...My eldest Jess finally bought a house with her wonderful partner Niall. Exciting times as they begin their journey....good luck to them both. And can some one please tell them that Banco de mum & dad is closed until further notice .....

Had a lovely visit from Bryn and Jan, Bryn (34 years PD) is a real inspiration as he never lets it get to him...brave fella

A friend whom I had not seen for a couple of years came to see me, shocked elated and at the same time sad. He has been through some serious issues having a large tumour removed from his brain. However his attitude and the will never to give up has seen him improve beyond expectations. Inspired..yes!!

Some times you never know what to say, sometimes you just get a bit 'what is the point' type of attitude. Especially when you know this disease is taking you apart bit by bit...!!!

The last few months/weeks have seen some new additions to the illness...again this is not me moaning but telling people the real stuff that happens!!

Things are changing and life is becoming more difficult, more falls, tripping over, balance is terrible. Making mistakes and the every day to day daily stuff is becoming harder. Dropping things,I now choke/cough on fluids, food, saliva etc especially if I am not concentrating... i would say 3-4 times a day!! I promise it is not my wife's cooking either. Concentration levels seem less and i find it difficult to carry out some tasks now. Even as I write this now I am nodding off....so I will break off here and resume in a while.....ahh back.. so where was I oh talking about the boring stuff..
 just seems the good days are getting fewer..... Me I couldn't give too-hoots as the one or two things I like are being eroded away. Hey Ho!! I guess you except the fact that the illness will progress. To be really honest i often wonder whether to switch off the DBS and co.me off all meds..At least I know what the day will be like!!! But that is not fair on my wife and family and friends. But in all seriousness I hate the word CAN'T but to do some basic tasks have become harder both mentally and physically. I am not a quitter, but sometimes you just get pissed with all the crap that this disease throws at you.

Anyway enough of that bull sh**t  ...